What will you do with my data?

Your survey data (and cognitive assessment data if you take part in this aspect) will be held on secure servers at Imperial College London, linked to your earlier data collected during the REACT study, and given a unique study code so that your identity remains confidential. If you have consented to health data linkage, Imperial College London will also use information from your medical records held by NHS England and other UK public health bodies for this research project. This information will be linked by your NHS number. Investigators will use this information to monitor the long term health status of participants from this study. Unless they really need to know who you are, they will not be able to see your name or contact details. Your data will have a code number instead. The number of people who access this information will be kept to a minimum. We will keep all information about you safe and secure. Once we have finished the study, we will keep some of the data so we can check the results. We will write our reports in a way that no-one can work out that you took part in the study. Imperial College and other research institutions both academic and commercial may continue to carry out research using the de-identified data collected during the study. The results of any research that is published, whether by Imperial College or anyone else, will never identify you. See ‘Do you share my information with others’ to learn more. From time to time we may invite you to other research studies that you might be interested in participating in. Even if you receive invitations to future studies, there is no obligation to take part and you can drop out at any time. The information you share with us as part of this study will only be used for the purpose of health and care research or to contact you about future opportunities to participate in research. It will not be used to make decisions about your healthcare or future services available to you, such as insurance.